The first thing I try to figure out everyday is “what works” and “what doesnt”. It is probably the hardest question I try to answer everyday. There are so many things Lewy affects that going through them all is near impossible. I find it easiest to start at the top with big things. Brain, about … Continue reading Travels with Lewy – What Will Work Today
As we travel in the Lewy Roller Coaster, we often need help along the way. In my opinion, the best help other than doctors is support groups. No question is too small to ask, every question is valuable if it helps someone feel more at ease with all the highways and loops and spins of … Continue reading Travels with Lewy – Support Groups
Depression and Apathy, they have similar descriptions but are they that similar. With Apathy, you get a feeling of not caring maybe some confusion and a feeling of not wanting to do anything. While with Depression you don’t care at all anymore about, what happens, whom you may be hurting, or what outcome your actions … Continue reading Travels with Lewy – Depression and Apathy
When you hear the word teaching in association with Lewy Body, you would think it should be the patient being taught but sadly in most cases it is the doctor who needs to be taught. One of my good friends in the Lewy groups took her husband to the hospital recently and she had to … Continue reading Travels with Lewy – Teaching
As we Lewys keep fighting and staying on our path to fight Lewy, reading updated symptom lists checking to see if it has been updated (highly unlikely) or if there is a drug interaction that may be causing the symptoms. This time mine were related to a short procedure and the use of numbing jelly. … Continue reading Travels with Lewy – New Unkown Symptoms
As we Lewies try to live our lives, altered as they are from our previous living style, we still have things to offer, some have more than others but most of us can do something for a long time after diagnosis, unless WE give up. We may not be able to do what we used … Continue reading Travels with Lewy: I Haven’t Lost Yet.
This past Monday, I was the guest on the Podcast, A Lewy Roller Coaster. https://www.buzzsprout.com/1298360/7505536 This was quite entertaining and productive. Please give a listen as Curry Wisenhunt and myself exchanged points of view while Linda Ashcom Szypula offers the caregivers perspective. Curry and Linda have the page, Our Journey with Lewy Body Dementia. Please … Continue reading Podcast – Staying Positive even with Lewy and Parkinsonism!
When you start on the Lewy Path, you need ways and guides to help you on the journey. I have a 3 links that I use at least once every few days to guide me and let me know that I am not alone. The first link tells about the finding and getting a diagnosis. … Continue reading Travels with Lewy – Information packs
Travels with Lewy is Brian Dougherty’s account of his life with Lewy Body Dementia.